If so, I would love to talk to you. I am a graduate student at UC Berkeley working with a team to design a product/service that can help caregivers by engaging the one they care for emotionally. We need to speak with family caregivers who can give us insights into their needs and challenges, while also giving some feedback on some potential solutions. If you are able to help, please comment or contact me directly at email@example.com We truly appreciate your engagement.
I care for my mother who has Parkinsons (she's 56) and she lives alone. And will continue to as long as possible.
I saw your response about your Mom. It has been a few months since you posted, but in case you are looking for help, there are a number of options that can pick up various aspects of caring for your Mom. My wife and I used to have senior helpers drop in and take care of a number of areas for my mother-in-law, while we still had to do all the appointments keeping and working with doctors. It got really pricey with all the time racked up by these senior helpers. A couple months ago we started using a personal health hub business to take a good portion of the burden of us and we have saved money as well. The company is VeruStat (www.verustat.com) and they provided us a health coach to take care of all the care coordination and provided my mother-in-law medical devices to monitor her vitals and to ensure she was taking her medication correctly. The important part for my mother-in-law is that they do all this remotely and contact us if any issues arise. And they are significantly cheaper over the course of a month than paying an hourly senior helper. We still do have the helper come out to assist with some cooking and cleaning, but we have been able to reduce that time in half, which saves us money even after the amount we pay for this other service. Selfishly for us, we've been able to focus more on our own life and have not had to nag and worry as much about her. Not sure you're even looking for help and if so, they might not be right for you, but worth checking out. Hope this helps or leads to another service that might allow your Mom to be independent as long as possible.
I have been taking care of my father for the past 2 years