i am physically unable to care for my loved one but the hospital is strong-arming me to do so. I have repeatedly stated I am disabled and unable to be a caregiver anymore. I just spent several weeks while my loved one declined confined to my home caring for him. I went 4-5 days in a row with absolutely no sleep, and when I did sleep it was cat naps for a few minutes. I couldnt see my family or friends, I have other family obligations, I cannot see my own doctors. I passed out three times in the house out of exhaustion. He is bedbound and the hospital wants to send him home on hospice care. My feelings are being ignored by the medical staff, and they are pushing responsibilies onto me that I have clearly stated I am unable to to do, again Im on disability. This has caused a horrendous amount of stress, and is affecting my health mentally and physically. We had private duty caregivers set up for when he came home but the agency wont le the person who has durable power of attorney sign the paperwork to get that started. They say if he does he becomes personally financially liable fo the bill. I have never heard of such a thing, I am really stuck and scared because my health has been severely affected by all of this and I cannot physcially care for him, and the hospital doesnt seem to "get it" that my loved one is not coming home to a safe environment being that there isnt a capable caregiver there for him. Ive basically been told, "tough luck, lady" There have been several discussions with social services, and each person tells me something different. Im being expected to work machinery for him, and use IV lpumps, feeding tube pumps, etc. None of which I am mentally or physically capable of doing. This has gotten so bad that my doctors are wanting to get involved on my behalf. Where can I turn for assistance in this matter?
I understand how frustrating and stressful your situation must be. Here are some resources that may be able to help you:
1. Social Services:
2. Legal Resources:
3. Ombudsman:
4. Online Resources:
I'm not a legal or medical professional, but I can offer some general suggestions for your situation. It's crucial to consult with professionals who can provide personalized advice based on your specific circumstances. Here are some potential steps you might consider:
Contact a Patient Advocate or Ombudsman
Legal Assistance
Contact Social Services
Medical Professionals
Explore Community Resources:
Seek Guidance from Disability Services
Review Insurance Coverage
Document Your Situation
Emergency Services
Remember, seeking advice from professionals who specialize in these matters is crucial. Your local health department, legal aid organizations, and disability support services may be able to offer guidance specific to your region and circumstances.
I'm not a legal professional, but I can offer some general guidance that may help you navigate this challenging situation. It's important to consult with professionals in your jurisdiction to get advice tailored to your specific circumstances.
Consult with an Elder Law Attorney: Seek advice from an attorney who specializes in elder law or healthcare law. They can help you understand your rights, the responsibilities of the hospital, and how to navigate the situation. An attorney can also assist in addressing issues related to power of attorney, caregiver responsibilities, and any potential financial liability.
Contact Your Ombudsman Program: Every state in the U.S. has an ombudsman program that helps resolve issues related to long-term care facilities and services. They can provide information, support, and advocacy. Find the contact information for the ombudsman program in your state and reach out to them.
Speak with Patient Advocacy Services: Many hospitals have patient advocacy services or departments. Contact them to explain your situation and express your concerns. They may be able to intervene on your behalf and work with the medical staff to find a solution that ensures the well-being of your loved one while taking your limitations into account.
Explore Local Support Services: Contact local social services agencies, disability support organizations, or community groups. They may be able to provide assistance, resources, positive words that start s, or connect you with relevant support networks.
Document Everything: Keep detailed records of all conversations, communications, and incidents related to your loved one's care. This documentation can be valuable if you need to escalate the situation or seek legal advice.
Seek Assistance from Your Healthcare Providers: Since your doctors are willing to get involved, consult with them about your situation. They may be able to provide medical opinions or documentation that supports your case and highlights the potential harm to your health.
Consider Mediation: If discussions with the hospital and other parties involved are not productive, you may explore mediation services. A neutral third party can help facilitate communication and negotiation to find a resolution.
Remember, it's crucial to consult with professionals who can provide legal and healthcare advice specific to your situation. Don't hesitate to reach out to local advocacy organizations or support groups for additional guidance and resources.