Being Forced into caregiving when disabled and unable to do so. | Caregiver Action Network

Being Forced into caregiving when disabled and unable to do so.

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Lilmiz
Being Forced into caregiving when disabled and unable to do so.

i am physically unable to care for my loved one but the hospital is strong-arming me to do so. I have repeatedly stated I am disabled and unable to be a caregiver anymore. I just spent several weeks while my loved one declined confined to my home caring for him. I went 4-5 days in a row with absolutely no sleep, and when I did sleep it was cat naps for a few minutes. I couldnt see my family or friends, I have other family obligations, I cannot see my own doctors. I passed out three times in the house out of exhaustion. He is bedbound and the hospital wants to send him home on hospice care. My feelings are being ignored by the medical staff, and they are pushing responsibilies onto me that I have clearly stated I am unable to to do, again Im on disability. This has caused a horrendous amount of stress, and is affecting my health mentally and physically. We had private duty caregivers set up for when he came home but the agency wont le the person who has durable power of attorney sign the paperwork to get that started. They say if he does he becomes personally financially liable fo the bill. I have never heard of such a thing, I am really stuck and scared because my health has been severely affected by all of this and I cannot physcially care for him, and the hospital doesnt seem to "get it" that my loved one is not coming home to a safe environment being that there isnt a capable caregiver there for him. Ive basically been told, "tough luck, lady" There have been several discussions with social services, and each person tells me something different. Im being expected to work machinery for him, and use IV lpumps, feeding tube pumps, etc. None of which I am mentally or physically capable of doing. This has gotten so bad that my doctors are wanting to get involved on my behalf. Where can I turn for assistance in this matter?