Good Morning Everyone | Caregiver Action Network

Good Morning

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morjan614
Good Morning

Good Morning Everyone,

My name is Janice. I am in my early sixties and I am the caregiver for my husband, who is in his early seventies. He was diagnosed in 2017 with myasthenia gravis. However he was showing symptoms of this condition four years earlier. He had been hospitalized at the time  with droopy eyelids what the hospital neurologist.which the neurologist and the hospital hypertension specialist both said was caused by high blood pressure. His opthamologist at the time concurred and saw that his vision would be restored in a few months. It was.

He was fine for a few years -- commuting  by car 1 hour or more to work fulltime by car. He also drove for errands and pleasure.

Then in April 2017 he had a full-blown myasthenia gravis attack. He was officially diagnosed with MG & in June he suffered a severe respiratory crisis. Hw=e was in critical condition for a while with other complications.

After he returned home in August 2017, he convalesced well enough to be allowed to return to his job part-time in December 2017.

He is on a lot of meds for different conditions, has to see 4 doctors (some more frequently than others). 

This has made him more frustrated, anxious, and has more emotional outbursts. 

I decided to look for both online and in-person caregiver support groups/networks. Thank you very much for providing this community and forum.

 

NGoble
Hi, Janice!

Hi, Janice!

I'm Nichole, CAN's Program Coordinator. I don't know if you have had a chance to check out our Finding the Right Support Group tool but it is a fantastic place to start to make sure you find a support group/network that will work best for you.

 

Don't hesitate to reach out to us if you have any questions!

Nichole