My name is Reed | Caregiver Action Network

My name is Reed

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Reedsmyname
My name is Reed

Or .maybe thats just what I'm going by. Who knows? I'm 28, my wife is 26. I've been a caregiver to my wife for a little under a decade. I don't know what to say what her conditions are, it seems more like a what they aren't thing. Mental, physical, immune, hormonal, essentially neurological. They just keep piling on and nothing is getting diagnosed. Its a long story... I think she is dying. I want so badly for it not to be true and I don't want to tell her that I think so. I think she thinks so, too.

Stuck
Welcome to the world of no answers Reed

Hi he who goes by Reed, I'm Karly, and I'm 57 and my husband is 62.  He filed for workers Comp at age 47 due to toxic chemical exposure 4 years after we got married and there went my dreams of a happily ever after.  We spent the next 10 years going from doctor to doctor with no diagnosis for anything except a bunch of maybe this it could be that but nothing official so I totally feel your frustration.  A friend asked me once if I thought hubby was dying and I said yes...that was 10 years ago. He had a heart attack in 2015 and survived that...I hate to even admit it now but in some ways I wish he had not as it just prolonged his suffering as dementia is starting to show its ugly head.  Now I'm married almost 20 years and cannot imagine how to begin the process of walking away from him or arranging memory care for him in a facility...the older you get, the longer you stay in it the harder it is.  What do the doctors say? I guess the only thing I can offer is support and a cyber hug. You got this!  What can I do to help?