My name is Jen Alverson | Caregiver Action Network

Jen

Name: 
Jen Alverson
Location: 
South Ogden
Caregiver Relationship: 
Parent
Living Arrangements: 
Share Home
Primary Illness: 
Frail/Elderly

My name is Jen and I've been caring for my mother, Julie, for close to six years. I am currently 45 and my mother is 72. My mother has dementia which has been coming on gradually for many years, but in October 2008 it became clear that she shouldn't be living on her own any longer. I left a job and university studies in Anchorage, AK to return to Utah. We moved her out of her apartment and into one that we could both call home. She had begun hoarding, and the initial clean-out of her small apartment yielded 45+ boxes to Deseret Industries and 75+ garbage bags to the dumpster. I have since pared down even more, and cleaned out a storage unit, giving most of the contents away. I recently finished cleaning out 10 boxes of pictures which resulted in 3 boxes of usable family history. The first three years of our living together, she was ok staying at home by herself while I went to work and school. By the end of that third year, it was clear that she shouldn't be home alone. She had also begun having seizures (still unexplained). So, I decided that I would focus on my graduate degree and financially positioning myself to be able to live on her retirement, which is quite generous and deserved after 34 years of faithful service. Mom is currently on hospice which provides amazing benefits (though not financial). I have been very blessed by my older brother's family, who help with respite, and very supportive younger brother, aunt, and uncle who universally agree on Mom's care. We have no bickering, fighting, grudges, jealousy, etc in our family. I know that is rare, and I'm thankful every moment that it is part of our story.

Wish List: 
Wishes: 1) Hospice care be made available for all people who require a caregiver. While there are no financial benefits to me as a caregiver, the burden of keeping track of meds, bowels, moods, appointments, etc is shared, Mom has an aide to shower her, and they coordinate a senior companion (giving me a regular break), not to mention in-home visits with the nurse and doc. Hospice has been the single most helpful thing in my caregiving experience. 2) I wish that every state had end-of-life laws in place which would allow people a choice in their own death. 3) Lastly, I wish that states would consider doing a bit of research to determine financial impact of a stipend for full-time caregivers or assistance for long-term in-home care. In my situation, we live a bare-bones life, which is ok with me. I know there are others who would like to be able to keep loved ones at home but are prevented by finances. Not to mention I would love to have a regular job, but I would need to be making $35/hr to break even on Mom's daily care. That just doesn't happen very often in my field of education.