Constant feeling of hopelessness | Caregiver Action Network

Constant feeling of hopelessness

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Arbee
Constant feeling of hopelessness

Hello fellow brave caregivers!

 

I am writing this topic to share/vent about my situation hoping that some people will relate or even share some tips.

It's going to be a long read, I'm sorry if it's too much.

 

(For context: my dad has never been around, my sister refuses to help)

I've been gradually taking care of my mom for the past 11 years. It started insidiously with paperwork, I remember just turning 15 and having to do all the paperwork to go to high-school...looking back on it, I realize that it is where it all began.

My mom has been an incredibly heavy smoker during her whole life, and I've seen her health slowly deteriorates because of it. 

Of course, it started with lungs problems, which means that when she came to her 50s, she became unable to do anything without being awefully breathless. I soon had to start taking over stuff in the house, like cleaning, cooking, groceries (by foot, we've never own a car), and eventually all the paperwork (I'll come to it further down).

At a quite young age, I had to "give up" on "normal" teen life and take on adult responsibilities.

Regardless of her growing health issues, she continued smoking.

Eventually years go by, nevertheless, I manage to have quite a regular life. As I start working (as a special need caregiver), I discover volunteering, so as a "reward" to me, I allowed myself to go for a volunteering/gap year in the US (I am French), as a special needs caregiver, in hope of learning a job I could do properly back home. Leaving home was horribly difficult as my mom is an overprotective one and she was also starting to be dependent on me at that time.

While I was in the US, she had several strokes, she survived them and got several months to a rehabilitation center that allowed me to finish my year in the states as she was being taken care of.

So the year ends, I go back home, and this is when I become a full time family caregiver. My sister absolutely refuses to help because she claims she doesn't have time and it's on me to do that.

While being emotionally drained from this new situation, realizing that my mom would never be like she used to be, I managed to go through,  and managed to help her, on every possible level. I had to do everything by myself (because she was too young to be taken care of by home nurses and all).

I don't want to give myself much credit, but after months of daily hard work, i managed to put her back on her feet, as much as possible, but in the meantime, my life was a complete desert.

I eventually decided to take a second chance for me to build something of my life ( as I was slowly but surely aging), I decided to go study in the US. This time around was actually easier and got to study for a year, but then, hell broke loose.

She happened to have another stroke right before the pandemic hit. So, being all alone, I had to go back home to take care of her, hence once again, being "forced" to cancel my life.

Then as we all know, the pandemic hit and here I was, stuck at home in france, without the possibility to go back to my studies anytime soon. At the same time, she also got diagnosed with COPD, and the addition of all her health problems at this point (diabetes, heart problems, lungs problems, obesity, asthma, strokes, ect...) made her housebound, and my dad died really quickly from cancer, and my situation is so bad I did not even have time to actually grieve him and it makes desperate.

As of right now, I'm all alone taking care of my mom with huge health problems, she can't even walk anymore, on top of that, we've been scammed by false home aids that took opportunity of the situation. Her health issues are such that she requires help day and night, so I end up helping her for about 20hrs a day. 

I only have a 30min break a day when there's nurses coming to help me giving her showers. We can only afford to get this help  and nothing else.

So now I'm 26, with nothing in my life, no wife, no kids, i don't have time to work and make money like a proper adult, my friends are literally an ocean away, plus this freaking pandemic.

My mental health has been through so much, I'm trying to be positive as much as I can, but i can't help being desperate and I'm so deeply depressed now I'm scared for my health. I'm running out of will, of patience, I'm questioning myself constantly, I can't even escape every now and then because we zre quarantined here and there is that fear that if she gets the virus, she obviously won't survive it. I feel hopeless. I now have anxiety attacks every now and then, i don't get any relieve, never. Im constantly working, doing something, I can't sleep properly as i have to also be aware during the night.

I feel like I've failed my life. That I will never be able to go back to my studies in the US and it's making me feel miserable. I feel so alone, i don't know anyone that have been through similar situations, that would help me so much to have some tips and tricks to keep my head out of the water.

I'm so depressed, i don't see any good outcome of this whole situation for neither of us. I'm such in bad shape mentally atm that I'm starting to have physical problems due to constant state of stress and anxiety.

I've burned out, and i feel like all thz resentment I've stored deep inside all these years for not being able to live my own life and being stopped everytime im actually starting to make something out of my miserable life, is coming out right now, all at once.

I'm so done of having it hard, and this is so bull*** because most of these problems are not even mines to being with !!

 

Again, I'm sorry for this whole novel, but i needed to vent, if anyone is reading this, thank you for your time. It feels nice to be heard, if any of you have some advice to go through all this, I'd gladly take them :)

 

Tia
Tia's picture
Hello—- you are amazing

I just wanted to say that what you are doing, at your age, is amazing. Really. I hope that you can find some help, because without your sanity, you won't be any help to your mom.     Hold on for your life-- this too shall pass. You are a great son to be doing this, but you need help!   

May God bless you richly.   

Tia  

 

 

Jen K.
Hopelessness

I understand your frustration, because your life is now on hold and you are doing a job you did not sign up for!  But you're so young, only 26, with plenty of years ahead of you.  I'm now 63, and just retired.  My husband and I planned to travel extensively once we were free of work responsibilities, but first the pandemic hit, then my 92 year old mother with mild dementia fell and broke her hip.  I am now her full time care-giver, in charge of everything.  And I'm an only child, so there isn't anyone else to turn to.  I never had kids either, never wanted them - but now I have a 92 child I'm responsible for.   Good-bye, life!  Good-bye, dreams!  Or have I already died, and I'm actually now in hell?

Rod Lee
You are a very strong person.
You are a very strong person. Let your mood always be great.
Rod Lee
Your story touched me very

Your story touched me very much. It is understandable why you have a constant feeling of hopelessness. It's time for you to start arranging your life. I believe that first you need to understand what is sense of self And then try to start a relationship. For example, I read a lot before entering a relationship. And this article is like a handbook for me. Wish you luck!