In Pa My son's TBI and age made it difficult to find a program that would help by paying us to care for him. He needs 24 hr a day care and we did'nt want to put him in a nursing home. Eight yrs later we finally got help. As caregiver pay was for 42 hrs a week. Then last yr. we had to change providers due to changes the state made. Then were informed we would lose $.50 an hr. again due to state laws. Now last week was informed as of Jan. 2015, we will only get paid for forty hrs a week. Costs keep rising yet the state keeps cutting the funds we need to survive! Total loss from when they started changing things will be approx. $142 a month so far.