New here and confused | Caregiver Action Network

New here and confused

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krissy_is_a_mess
krissy_is_a_mess's picture
New here and confused

Just want to say hi. I am a newbie and want to reach out to say hello and say thank goodness that I stumbled upon this. My husband been diagnosed with end stage renal failure and will not be seeking dialysis. We've been married 28 years, and I've known him since I was 8 years old. I cannot fathom not having this man in my life, so just processing the fact that I will be losing him is crushing me. He doesn't know how bad it is destroying me because i won't break down in front of him. So, support is what I need at this point to help me take care of him. thanks guys, can't write anymore because i'm crying...

NicholeGoble
NicholeGoble's picture
Krissy,

Krissy,

Thank you for reaching out on our Care Community and sharing a bit of your story. Connecting and finding support is an important part of self-care as a caregiver and vital to being able to continue to care for your husband. 

There may be some additional resources or support that can help you at this incrediby difficult time. I would suggest reaching out to our Caregiver Help Desk at 855-227-3640 (or click on the chat or e-mail functions here on this website) to connect with one the Caregiving Experts. They are knowledgeable, supportive, and there to help you find whatever kind of support you need.

Always feel free to reach out to CAN if there is anything else we can help you with. We're here for you.

Nichole, Program Coordinator

JB
JB's picture
ESRD and new too.

Hi Krissy, 

I understand some of what you are going through. My husband is in renal failure and has been in dialysis for almost four years.; It's been really rough. He talks about stopping dialysis all the time. We've been married 38 years and we have know each other since I was 13. Dialysis is not easy either. We've been living with death for almost four years now.