So many questions | Caregiver Action Network

So many questions

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Jerry's sister
So many questions

Hello, I'm not a caregiver for brother, I'm more of a caregiver for my sister in law. They are 79 and 75 respectively.  I am his youngest sister, 71.  They only have one daughter, who is in a group home with mental disabilities.  I have somehow become their only link to the outside world.  My parents are gone, and so are my sister in law's.  I live 30 miles away with my husband.  My brother was diagnosed with mid-level dementia last May.  Since then I have tried to be there for them with their doctor appts., (Cleveland Clinic geriatrician comes to their house.  I have tried to visit at least once a week, bringing their favorite foods, and amusing games and things for my brother to engage.   He can carry on a conversation for a short while, but he does not initiate anything.  I can see my sister in law, Jen, falling apart.  She has always been a very rigid, scheduled person, has always been on medication, she's always been emotionally fragile.  She says she will never put him in a home.  Here's part of  the problem.  She will not ask for help, she thinks anyone who comes into her home is going to steal from them. She says she is taking good care of him.  I've hooked her up with people to talk to, she won't.  I've given her numbers to call, she won't.  I said I would go to Alzheimer's meetings with her, she says no.  She knows they can't help her.  What do you do?  She loses her temper with him for every little thing he does wrong, she puts on the political news channel all day long and he sits and stares.  He won't leave the house.  She goes shopping and to an art class once a week, I'm afraid he will walk away someday.  She belittles him, ( I know it can't be easy, I know it's a hell for her) but I don't think he deserves to be sworn at because he flushed the toilet after she put in toilet cleaner, and therefore wasted it!!  I was on the phone with her when this happened and I was stunned at her language she used with him.   I try to help, what else can I do if she won't accept any??  I feel for her, I feel more for my incapacitated brother.

 

 

 

 

MissMo
MissMo's picture
Rough time with covid
My husband Joe has COPD and is jumping through hoops to receive a double lung transplant. Then we both caught covid. OmG so horrible! While I was so sick, we had to call emp's for Joe, they said all hospitals in our area were full, so we called the transplant team who instructed us to drive three hours in the snow to the hospital where as you all know I could not go in with covid so had to drive three hours all the way home. No one bothered to call me to keep me updated, so after sobbing for hours I sat on hold for 45 minutes before talking to a nurse who sounded like she just could not understand WHY I was worried. Four days later made drive again, got him home and have not been able to really get over it. Yeah I know covid and they are swamped, but not one phone call? It feels as though my nerves are on high alert all the time. I think I need to take my dog to the park