The Health Insurance Portability and Accountability Act (HIPAA) protects the privacy of a patient’s health information. But for caregivers, especially those supporting someone with a serious illness or disability, HIPAA can be confusing and sometimes feel like a barrier to helping your loved one. HIPAA protects your loved one’s privacy, but doesn’t have to shut caregivers out. 

HIPAA limits what providers can share without consent, but does not prevent you from advocating or being involved. Your voice as a caregiver still matters in coordinating safe and effective care.