This November, during National Family Caregivers Month, Caregiver Action Network’s Plug-in to Care campaign focuses on helping caregivers connect to the right resources at the right time. For those caring for someone, connection is especially important—whether to trusted information, supportive communities, or caregiver self-care tools.

The Caregiver’s Role in ALS

Amyotrophic Lateral Sclerosis (ALS) is a progressive neurodegenerative disease that affects muscle control, mobility, speech, and eventually breathing. As the disease advances, family caregivers play a crucial role in providing daily assistance, coordinating medical care, and ensuring quality of life. Because ALS caregiving demands change rapidly over time, caregivers often need ongoing support, training, and resources to meet both their loved one’s and their own needs.

amyotrophic lateral sclerosis

Top 3 Things Caregivers Should Know

The Care Journey is Progressive

ALS caregiving needs evolve quickly—from mobility support to respiratory assistance—making flexibility and ongoing education essential.

Emotional and Physical Strain is High

The rapid pace of decline and emotional toll can lead to stress, fatigue, and grief. Caregivers should not hesitate to seek counseling and peer support.

Building a Care Team Helps

No one can manage ALS alone. Coordinating with medical professionals, respite care services, and support networks ensures sustainable caregiving.

Plug-in to Care: Stay Connected

Caregiving for someone can be complex, but you don’t have to face it alone. This National Family Caregivers Month, Plug-in to Care by connecting with trusted resources, communities, and support to sustain both your loved one’s health and your own.

Plug-in to Care  is made possible with support by:

Campaign Sponsors

Eisai
First Quality
Lilly
Novartis
Otsuka
Teva Pharmaceuticals

Diamond Sponsors

Alnylam Pharmaceuticals
Bristol Myers Squibb
Neurocrine
Vertex

Gold, Silver & Friend Sponsors

Acadia
Alkermes
Nomo Smart Care
PHRMA
Psych Congress