Caring for a Loved One with Amyotrophic Lateral Sclerosis (ALS)

Caregiving doesn’t pause after November — and neither does the importance of staying connected to the right support. Plug-in to Care helps caregivers find trusted information, supportive communities, and practical tools that make each day a little more manageable. Whether you’re caring for a loved one this holiday season or any time of year, connection can make all the difference.

The Caregiver’s Role in ALS

Amyotrophic Lateral Sclerosis (ALS) is a progressive neurodegenerative disease that affects muscle control, mobility, speech, and eventually breathing. As the disease advances, family caregivers play a crucial role in providing daily assistance, coordinating medical care, and ensuring quality of life. Because ALS caregiving demands change rapidly over time, caregivers often need ongoing support, training, and resources to meet both their loved one’s and their own needs.

Top 3 Things Caregivers Should Know

The Care Journey is Progressive

ALS caregiving needs evolve quickly—from mobility support to respiratory assistance—making flexibility and ongoing education essential.

Emotional and Physical Strain is High

The rapid pace of decline and emotional toll can lead to stress, fatigue, and grief. Caregivers should not hesitate to seek counseling and peer support.

Building a Care Team Helps

No one can manage ALS alone. Coordinating with medical professionals, respite care services, and support networks ensures sustainable caregiving.

ALS Caregiving Resources

Partner Resources

The ALS Association — Caregiver Resources & Guides
I AM ALS — Caregiver Community and Advocacy
Everything ALS — Education and Support Programs
The Caregiver Space — Online Caregiver Peer Support

Caregiver Action Network

Plug-in to Care: Stay Connected

Caregiving can be complex, but you don’t have to face it alone. Plug-in to Care by connecting with trusted resources, supportive communities, and tools that help you care for your loved one — and yourself — throughout the holiday season and beyond.