This November, during National Family Caregivers Month, Caregiver Action Network’s Plug-in to Care campaign focuses on helping caregivers connect to the right resources at the right time. For those caring for someone, connection is especially important—whether to trusted information, supportive communities, or caregiver self-care tools.
The Caregiver’s Role
Huntington’s disease is a hereditary, progressive neurological disorder that affects movement, cognition, and behavior. Over time, individuals may develop involuntary movements (chorea), difficulty with speech/swallowing, memory decline, mood changes, and executive functioning challenges. Caregivers are often called upon to adapt constantly—providing help not only with mobility or safety, but also with emotional support, communication, supervision, and planning for later stages. Because HD affects multiple domains, caregivers of people with HD must balance flexibility, education, self-care, and advocacy.
Top 3 Things Caregivers Should Know
Caregiving Resources
Partner Resources
Caregiver Action Network
This resource was developed with support from Huntington’s Disease Society of America, Huntington’s Disease Youth Organization, and Movement Disorder Policy Coalition.
Plug-in to Care is made possible with support by:
Campaign Sponsors
Diamond Sponsors
Gold, Silver & Friend Sponsors
