This November, during National Family Caregivers Month, Caregiver Action Network’s Plug-in to Care campaign focuses on helping caregivers connect to the right resources at the right time. For those caring for someone, connection is especially important—whether to trusted information, supportive communities, or caregiver self-care tools.

The Caregiver’s Role

Chronic Kidney Disease (CKD) is a long-term condition in which the kidneys gradually lose function over time, often progressing to end-stage renal disease (ESRD) requiring dialysis or transplantation. Caregivers often help manage complex medication schedules, dietary and fluid restrictions, lab monitoring, coordination with nephrologists, dialysis logistics, and emotional support. Because kidney disease can fluctuate and its treatments can be burdensome, caregivers must balance vigilance, planning, and self-care.

Kidney Disease

Top 3 Things Caregivers Should Know

Managing Diet, Fluids & Medications Is a Daily Balancing Act

Kidney disease care often involves strict limits on sodium, phosphorus, potassium, protein, and fluids—along with medications (e.g. to control blood pressure, anemia, mineral balance). Small dietary or medication missteps can lead to serious consequences, so clear tracking, communication, and coordination with the care team are essential.

Dialysis, Transplant, and Treatment Options Bring New Care Demands

As CKD advances, decisions around dialysis (in-center, home hemodialysis, peritoneal) or the possibility of transplant become central. Caregivers may need to assist with treatment logistics, understanding modalities, post-treatment recovery, and adjustments in life rhythm.

Emotional & Practical Burden Can Be Underestimated

Kidney disease often carries fatigue, hospitalizations, uncertainty, and lifestyle limitations. Caregivers are at risk of burnout, emotional strain, or neglecting their own health. Establishing support, respite strategies, and setting boundaries is as important as the medical caregiving role.

Caregiving Resources

Partner Resources

Caregiver Action Network

This resource was developed with support from IgAN Foundation.

Plug-in to Care: Stay Connected

Caregiving for someone can be complex, but you don’t have to face it alone. This National Family Caregivers Month, Plug-in to Care by connecting with trusted resources, communities, and support to sustain both your loved one’s health and your own.

Plug-in to Care  is made possible with support by:

Campaign Sponsors

Eisai
First Quality
Lilly
Novartis
Otsuka
Teva Pharmaceuticals

Diamond Sponsors

Alnylam Pharmaceuticals
Bristol Myers Squibb
Neurocrine
Vertex

Gold, Silver & Friend Sponsors

Acadia
Alkermes
Nomo Smart Care
PHRMA
Psych Congress