Caring for a Loved One with Chronic Kidney Disease

Caregiving doesn’t pause after November — and neither does the importance of staying connected to the right support. Plug-in to Care helps caregivers find trusted information, supportive communities, and practical tools that make each day a little more manageable. Whether you’re caring for a loved one this holiday season or any time of year, connection can make all the difference.

The Caregiver’s Role

Chronic Kidney Disease (CKD) is a long-term condition in which the kidneys gradually lose function over time, often progressing to end-stage renal disease (ESRD) requiring dialysis or transplantation. Caregivers often help manage complex medication schedules, dietary and fluid restrictions, lab monitoring, coordination with nephrologists, dialysis logistics, and emotional support. Because kidney disease can fluctuate and its treatments can be burdensome, caregivers must balance vigilance, planning, and self-care.

Top 3 Things Caregivers Should Know

Managing Diet, Fluids & Medications Is a Daily Balancing Act

Kidney disease care often involves strict limits on sodium, phosphorus, potassium, protein, and fluids—along with medications (e.g. to control blood pressure, anemia, mineral balance). Small dietary or medication missteps can lead to serious consequences, so clear tracking, communication, and coordination with the care team are essential.

Dialysis, Transplant, and Treatment Options Bring New Care Demands

As CKD advances, decisions around dialysis (in-center, home hemodialysis, peritoneal) or the possibility of transplant become central. Caregivers may need to assist with treatment logistics, understanding modalities, post-treatment recovery, and adjustments in life rhythm.

Emotional & Practical Burden Can Be Underestimated

Kidney disease often carries fatigue, hospitalizations, uncertainty, and lifestyle limitations. Caregivers are at risk of burnout, emotional strain, or neglecting their own health. Establishing support, respite strategies, and setting boundaries is as important as the medical caregiving role.

Caregiving Resources

Partner Resources

American Kidney Fund (AKF):

> Tips for Caregivers — AKF provides an online resource with advice from caregivers on managing kidney disease and caring for someone on dialysis or with CKD.> Safety Net Grant Program — AKF offers a Safety Net Grant to help kidney patients (including dialysis and transplant recipients) with non-covered healthcare costs—transportation, prescriptions, and medical supplies.

> “Unsung Hero” Caregiver Article — AKF has written about the impact of caregivers in kidney disease care and the critical role they play.
National Kidney Foundation: Family & Caregiver Resources — The NKF provides a hub of tools, tips, and support specifically for caregivers managing kidney disease in loved ones.
IgAN Foundation: Care Partner / Caregiver Support — The IgA Nephropathy Foundation offers a Virtual Care Partner Support Group (meets monthly) and peer connection for caregivers. They also publish a “10 Tips for IgAN Caregivers and Care Partners” guide.

Caregiver Action Network

This resource was developed with support from IgAN Foundation.

Plug-in to Care: Stay Connected

Caregiving can be complex, but you don’t have to face it alone. Plug-in to Care by connecting with trusted resources, supportive communities, and tools that help you care for your loved one — and yourself — throughout the holiday season and beyond.