When caring for a loved one with leukemia, balancing work responsibilities often becomes one of the greatest challenges.
The unpredictable nature of the disease—emergency hospital visits, sudden changes in treatment plans, or days when fatigue overwhelms your loved one—can collide with the structured demands of a job.
Hear from Ana Z., caregiver for her son.
Es tan inesperado que no piensas en esas consecuencias, especialmente cuando se trata, por ejemplo, de elegir tu seguro. Aunque teníamos un seguro maravilloso, aún así no cubría muchas cosas que pensábamos que obviamente iban a estar cubiertas. Además, ojalá hubiera sabido, por ejemplo, que mi empresa, al ser una empresa pequeña, no ofrecía la FMLA. Así que, por mi parte, solo intentaba arreglármelas, cuidando de mi hijo en el hospital hasta las tres o cuatro de la madrugada.
You may find yourself constantly negotiating time off, rearranging schedules, or working late into the night to make up for missed hours – all of which is mentally and physically taxing.
The emotional toll can be just as heavy: trying to stay focused on work tasks while your mind is with your loved one at the clinic, or feeling guilty for leaving them at home while you’re at the office.