This November, during National Family Caregivers Month, Caregiver Action Network’s Plug-in to Care campaign focuses on helping caregivers connect to the right resources at the right time. For those caring for someone, connection is especially important—whether to trusted information, supportive communities, or caregiver self-care tools.

The Caregiver’s Role

Myasthenia Gravis (MG) is a chronic autoimmune neuromuscular disorder that causes weakness in the body’s voluntary muscles — the muscles we control for movements like talking, swallowing, breathing, and walking. It occurs when the immune system disrupts communication between nerves and muscles by producing antibodies that block or destroy acetylcholine receptors at the neuromuscular junction. This interruption prevents muscles from contracting properly, leading to fluctuating muscle weakness that can worsen with activity and improve with rest.
Caring for a loved one with MG can be uniquely challenging due to the unpredictable nature of the disease. Symptoms can vary greatly from day to day, making it difficult to plan routines or anticipate needs. This uncertainty, along with the emotional and physical toll of caregiving, makes support for MG caregivers essential.
Myasthenia Gravis

Top 3 Things Caregivers Should Know

The Symptoms of MG Fluctuate

Every day can feel and be different for somebody living with Myasthenia Gravis because symptoms fluctuate.

Practice Patience

An oldie but a goodie, patience is a virtue for both the caregiver and the individual living with Myasthenia Gravis.

Moderation is Key

With Myasthenia Gravis, overuse of muscles can make a persons situation worse and cause them to become more fatigued. Everything in moderation.

Caregiving Resources

Partner Resources

  • Myasthenia Gravis Association of the Heartland:

    > Programs & Services — What makes the MGA different? Our programs and services have been built to support patients and families impacted by MG on a personal level. Whether you are in search of a new neuromuscular provider or looking for someone to relate to as you go through the diagnostic process; the MGA is here to guide you through your MG journey with compassion and care.
    > Emergency Wallet — An emergency wallet for your loved one to carry with them so that crucial information is handy for doctor appointments and in the instance of an emergency. info@mgakc.org.
  • Myasthenia Gravis: Cautionary Drugs List — Some medications may make Myasthenia Gravis worse. It is important to weigh the risk of a medication worsening Myasthenia Gravis symptoms and the benefits the medication may provide with your doctor. Check with your neurologist/healthcare providers before surgery and before adding or stopping medications.

This resource was developed with support from Myasthenia Gravis Association of America and Myasthenia Gravis Association of Heartland.

Plug-in to Care: Stay Connected

Caregiving for someone can be complex, but you don’t have to face it alone. This National Family Caregivers Month, Plug-in to Care by connecting with trusted resources, communities, and support to sustain both your loved one’s health and your own.

Plug-in to Care  is made possible with support by:

Campaign Sponsors

Eisai
First Quality
Lilly
Novartis
Otsuka
Teva Pharmaceuticals

Diamond Sponsors

Alnylam Pharmaceuticals
Bristol Myers Squibb
Neurocrine
Vertex

Gold, Silver & Friend Sponsors

Acadia
Alkermes
Nomo Smart Care
PHRMA
Psych Congress