Caring for a Loved One with Paralysis

Caregiving doesn’t pause after November — and neither does the importance of staying connected to the right support. Plug-in to Care helps caregivers find trusted information, supportive communities, and practical tools that make each day a little more manageable. Whether you’re caring for a loved one this holiday season or any time of year, connection can make all the difference.

The Caregiver’s Role

Paralysis, due to spinal cord injury, stroke, neurological conditions, or other causes, presents unique challenges involving mobility, independence, prevention of secondary complications (pressure ulcers, respiratory issues, etc.), and emotional adaptation. Caregivers often need to coordinate medical care, assist with movement or transfers, adapt the home environment, support rehabilitation, and provide emotional resilience. Because paralysis often leads to lifelong change, caregivers should equip themselves with resources, peer support, and planning tools to maintain quality of life for both the person and themselves.

Top 3 Things Caregivers Should Know

Mobility & Safety Adaptations Are Foundational

How transfers, positioning, wheelchair use, home access, and assistive devices are managed deeply influences the person’s independence, skin health, and risk of injury. Learning safe techniques and making the environment accessible is critical.

Secondary Health Risks Cannot Be Overlooked

People with paralysis are at higher risk for complications like pressure sores, respiratory infections, urinary tract issues, spasticity, and circulatory problems. Vigilant preventive care and monitoring (skin checks, repositioning, respiratory care) are part of the caregiving role.

Emotional, Social & Identity Adjustment Matter Equally

Both the person experiencing paralysis and the caregiver may face grief, changes in roles, altered identity, isolation, and mental health strains. Finding peer support, counseling, and community connection is essential to sustain caregiving.

Caregiving Resources

Partner Resources

Christopher & Dana Reeve Foundation:

> Paralysis Resource Guide — A free, comprehensive guide (hundreds of pages) covering medical, rehabilitation, assistive technology, emotional health, peer support, and daily living topics for those living with paralysis and their caregivers.

> Support for Caregivers — This section offers curated resources, downloadable materials, and guidance specifically for caregivers of those with paralysis.

> Virtual Support Group (for caregivers and family members) — Free online groups where caregivers and family members connect, share, and gain guidance.

> Resources in Your Area | Community Directory — A locator for regional or local organizations, services, peer networks, and support connected to spinal cord injury and paralysis.

> Free Resources & Downloads for Caregivers — A repository of fact sheets, educational booklets, wallet cards, videos, and patient education materials standard for those living with paralysis and their caregivers.

Caregiver Action Network

Plug-in to Care: Stay Connected

Caregiving can be complex, but you don’t have to face it alone. Plug-in to Care by connecting with trusted resources, supportive communities, and tools that help you care for your loved one — and yourself — throughout the holiday season and beyond.