Alkermes, Inc. and the Caregiver Action Network (CAN) surveyed adults who provide unpaid care or support to a family member or friend diagnosed with schizophrenia.

The goal was to better understand the experience of caregiving, including perceptions around their loved ones’ treatment journey, and the challenges and impacts of schizophrenia caregiving. Alkermes, Inc. and CAN surveyed adults who provide unpaid care or support to a family member or friend diagnosed with schizophrenia.

This survey—fielded by CAN in the U.S. in August 2025—included 492 respondents over the age of 18 who at the time provided unpaid care or healthcare-related support–such as attending medical appointments, making treatment decisions, or helping take medication–to a family member or friend over the age of 18 diagnosed with schizophrenia. Schizophrenia is a serious and lifelong neurodevelopmental disorder affecting approximately 1.1% of the U.S. population.¹ Data show that caregiving can place a significant burden on finances, careers, and personal well-being.²

This effort reflects a joint commitment to understanding the experiences of people living with serious mental illnesses, such as schizophrenia, as well as the experiences of those individuals involved in their care.