If you're caring for an adult child who has aged out of many support services available to families with children with special needs, you may feel as though society believes your child is now "on their own." Colin Farrell’s Inspiration Actor Colin Farrell has started the Colin Farrell Foundation in honor of his 20-year-old son, [...]

In 2022, Celine Dion publicly revealed her diagnosis of Stiff Person Syndrome (SPS), a rare and debilitating neurological condition she had been quietly managing for years. While she initially canceled shows due to what was believed to be ear infections or sinus problems, Dion later shared that SPS had been impacting her ability to [...]

As many as one million people live with Parkinson’s in the US. Family members, friends, and neighbors are the ones who care for a loved one with Parkinson’s disease. Are you one of these selfless heroes providing care? Take comfort in knowing that you are not alone by hearing what your fellow caregivers [...]

Ruth is from Massachusetts and cares for her mom with TD and bipolar disorder. She shares how the stigma of TD has impacted her mom and how finding being able to continue enjoying the small moments with her mom, and share in laughter, has kept them going. She encourages other caregivers to find [...]

Tim is from Montana and cares for his wife, Maddie, with TD and schizophrenia. Maddie was diagnosed with schizophrenia and began treatment in her 20s, but recently was diagnosed with TD. Tim talks about the difficulties they had in getting a diagnosis and how they originally thought it might be Parkinson’s. Tim emphasizes [...]

For caregivers, grief often begins long before the final loss of a loved one. This anticipatory grief, combined with the intense emotional and physical demands of caregiving, can lead to a complex form of mourning that may require special attention and support. Understanding when grief becomes complicated is crucial for healing and recovery. What [...]

After years of caregiving, it's easy to lose sight of your own needs. When caregiving ends, whether due to the loss of a loved one or the transition into a different stage, it’s critical to focus on refueling after caregiving and rediscovering your own identity. This process is essential for both physical and emotional [...]

When caregiving ends, many former caregivers find themselves asking a profound question: "Who am I now?" The transition from caregiver to normal life isn't just about changing routines—it's about rediscovering yourself after caregiving and rebuilding an identity that may have been set aside for months or years. A Caregiver's Journey: Carolyn's Story For eight [...]