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  • Caring by Condition
    The Latest

    Caregiving Through Amyloidosis (ATTR): A Guide for Families

    A guide to help you better understand what ATTR is, what your loved one may be experiencing, and how your role as a caregiver evolves over time.

    Supporting Caregivers of Veterans with Bladder Cancer

    Bladder cancer caregiving for Veterans often includes long-term monitoring – not just one treatment and done. If you’re juggling appointments, symptoms, and VA logistics, this resource can help.

    partner sites

    Help for Cancer Caregivers

    Help for Cancer Caregivers provides information, education, and support that will help cancer caregivers care for themselves and their loved ones.

    Families, Addiction & Mental Health Network

    FAM, in partnership with CAN, helps caregivers find understanding, resources, and strategies to care for loved ones living with mental health or substance use disorders.

    Conditions
    Alzheimer’s
    Heart Failure
    Mental Health
    Parkinson’s
    Rare Disease
    Schizophrenia
    Sickle Cell
    Stroke
    TBI
    More>
    • Alzheimer’s Disease
    • Cancer Caregivers
    • Families, Addiction & Mental Health Network
    • Heart Failure
    • Lighting Your Way
    • Mental Health Challenges
    • Parkinson’s Disease
    • Rare Disease
    • Schizophrenia
    • Sickle Cell Disease
    • Stroke
    • TBI
    • More Conditions >>
  • Caregiver Resources
    Toolbox

    Explore CAN Resources

    Search by disease/condition, resource type, or caregiver role to find checklists, guides, and helpful tools for every stage of caregiving.

    10 Tips for Family Caregivers

    From seeking support to organizing medical information, find practical advice to navigate your caregiving journey with confidence.

    Information

    Basics of Caregiving

    Gain valuable tools, documents and checklists to support you on your caregiving journey.

    Financial & Legal Tools

    From understanding how to get paid as a family caregiver to accessing government benefits and assistance programs, find practical guidance and downloadable checklists to support your caregiving journey.

    Support
    Agencies & Organizations
    Community
    Respite Care
    Peer-to-Peer Support
    Emotional Support
    Clinical Trial Support

    Volunteer Services

    Community Care Corps is a national program that fosters innovative local models in which volunteers provide nonmedical assistance to family caregivers, older adults, or adults with disabilities in order to maintain their independence.

    View the caregiver-focused grantees. >>

    • 10 Tips for Family Caregivers
    • Agencies & Organizations
    • Basics of Caregiving
    • Clinical Trial Support
    • Community
    • Emotional Support
    • Financial & Legal Tools
    • Respite Care
    • Toolbox
    • Peer-to-Peer Support
    • Volunteer Services
  • About CAN
    CAN Initiatives

    NFC Month

    National Family Caregivers Month – celebrated each November — is a time to recognize and honor family caregivers across the country.

    CARE2030

    An initiative designed to connect caregivers, organizations, employers, innovators and key stakeholders by coordinating visibility, navigation and support into a system that makes caregiving manageable for every American.

    About CAN
    Who We Are
    Leadership
    Innovation Council
    Celebrity Champions
    Corporate Partners
    Public Policy
    Caregiver-Ready Workplaces
    Caregiving Landscape
    Lend Your Voice

    Caregivers in Context

    Caregiver Action Network is focused on bringing together storytelling, research, and cultural moments to influence how caregiving is portrayed in entertainment and understood in everyday life.

    • CARE2030: Building America’s Caregiver Support Infrastructure
    • Caregivers in Context
    • Caregiving Landscape
    • Celebrity Champions
    • Corporate Partners
    • History
    • Innovation Council
    • Leadership
    • Lend Your Voice
    • Mission
    • NFC Month
    • Caregiver-Ready Workplaces
    • Public Policy
    • Who We Are
  • Stay Connected
    Stay Connected

    Community

    Share your journey, find resources, and connect with others who understand. You’re not alone in navigating the challenges of caregiving.

    Media

    Explore press releases, request reprint permission, and view media resources for comprehensive coverage of our organization’s initiatives and news.

    Events

    Discover upcoming webinars, workshops, and sessions designed to support, educate, and empower family caregivers in every stage of their journey.

    Donate

    CAN is a non-profit organization providing education, peer support, and resources to family caregivers across the country free of charge.

    Contact

    Contact us to request a speaker, share your story, or get in touch with our team.

    • Contact
    • Media
    • Events
    • Community
    • Donate
  • Caring by Condition
    The Latest

    Caregiving Through Amyloidosis (ATTR): A Guide for Families

    A guide to help you better understand what ATTR is, what your loved one may be experiencing, and how your role as a caregiver evolves over time.

    Supporting Caregivers of Veterans with Bladder Cancer

    Bladder cancer caregiving for Veterans often includes long-term monitoring – not just one treatment and done. If you’re juggling appointments, symptoms, and VA logistics, this resource can help.

    partner sites

    Help for Cancer Caregivers

    Help for Cancer Caregivers provides information, education, and support that will help cancer caregivers care for themselves and their loved ones.

    Families, Addiction & Mental Health Network

    FAM, in partnership with CAN, helps caregivers find understanding, resources, and strategies to care for loved ones living with mental health or substance use disorders.

    Conditions
    Alzheimer’s
    Heart Failure
    Mental Health
    Parkinson’s
    Rare Disease
    Schizophrenia
    Sickle Cell
    Stroke
    TBI
    More>
    • Alzheimer’s Disease
    • Cancer Caregivers
    • Families, Addiction & Mental Health Network
    • Heart Failure
    • Lighting Your Way
    • Mental Health Challenges
    • Parkinson’s Disease
    • Rare Disease
    • Schizophrenia
    • Sickle Cell Disease
    • Stroke
    • TBI
    • More Conditions >>
  • Caregiver Resources
    Toolbox

    Explore CAN Resources

    Search by disease/condition, resource type, or caregiver role to find checklists, guides, and helpful tools for every stage of caregiving.

    10 Tips for Family Caregivers

    From seeking support to organizing medical information, find practical advice to navigate your caregiving journey with confidence.

    Information

    Basics of Caregiving

    Gain valuable tools, documents and checklists to support you on your caregiving journey.

    Financial & Legal Tools

    From understanding how to get paid as a family caregiver to accessing government benefits and assistance programs, find practical guidance and downloadable checklists to support your caregiving journey.

    Support
    Agencies & Organizations
    Community
    Respite Care
    Peer-to-Peer Support
    Emotional Support
    Clinical Trial Support

    Volunteer Services

    Community Care Corps is a national program that fosters innovative local models in which volunteers provide nonmedical assistance to family caregivers, older adults, or adults with disabilities in order to maintain their independence.

    View the caregiver-focused grantees. >>

    • 10 Tips for Family Caregivers
    • Agencies & Organizations
    • Basics of Caregiving
    • Clinical Trial Support
    • Community
    • Emotional Support
    • Financial & Legal Tools
    • Respite Care
    • Toolbox
    • Peer-to-Peer Support
    • Volunteer Services
  • About CAN
    CAN Initiatives

    NFC Month

    National Family Caregivers Month – celebrated each November — is a time to recognize and honor family caregivers across the country.

    CARE2030

    An initiative designed to connect caregivers, organizations, employers, innovators and key stakeholders by coordinating visibility, navigation and support into a system that makes caregiving manageable for every American.

    About CAN
    Who We Are
    Leadership
    Innovation Council
    Celebrity Champions
    Corporate Partners
    Public Policy
    Caregiver-Ready Workplaces
    Caregiving Landscape
    Lend Your Voice

    Caregivers in Context

    Caregiver Action Network is focused on bringing together storytelling, research, and cultural moments to influence how caregiving is portrayed in entertainment and understood in everyday life.

    • CARE2030: Building America’s Caregiver Support Infrastructure
    • Caregivers in Context
    • Caregiving Landscape
    • Celebrity Champions
    • Corporate Partners
    • History
    • Innovation Council
    • Leadership
    • Lend Your Voice
    • Mission
    • NFC Month
    • Caregiver-Ready Workplaces
    • Public Policy
    • Who We Are
  • Stay Connected
    Stay Connected

    Community

    Share your journey, find resources, and connect with others who understand. You’re not alone in navigating the challenges of caregiving.

    Media

    Explore press releases, request reprint permission, and view media resources for comprehensive coverage of our organization’s initiatives and news.

    Events

    Discover upcoming webinars, workshops, and sessions designed to support, educate, and empower family caregivers in every stage of their journey.

    Donate

    CAN is a non-profit organization providing education, peer support, and resources to family caregivers across the country free of charge.

    Contact

    Contact us to request a speaker, share your story, or get in touch with our team.

    • Contact
    • Media
    • Events
    • Community
    • Donate
Caregiver Action Network
  • Caring by Condition
    The Latest

    Caregiving Through Amyloidosis (ATTR): A Guide for Families

    A guide to help you better understand what ATTR is, what your loved one may be experiencing, and how your role as a caregiver evolves over time.

    Supporting Caregivers of Veterans with Bladder Cancer

    Bladder cancer caregiving for Veterans often includes long-term monitoring – not just one treatment and done. If you’re juggling appointments, symptoms, and VA logistics, this resource can help.

    partner sites

    Help for Cancer Caregivers

    Help for Cancer Caregivers provides information, education, and support that will help cancer caregivers care for themselves and their loved ones.

    Families, Addiction & Mental Health Network

    FAM, in partnership with CAN, helps caregivers find understanding, resources, and strategies to care for loved ones living with mental health or substance use disorders.

    Conditions
    Alzheimer’s
    Heart Failure
    Mental Health
    Parkinson’s
    Rare Disease
    Schizophrenia
    Sickle Cell
    Stroke
    TBI
    More>
    • Alzheimer’s Disease
    • Cancer Caregivers
    • Families, Addiction & Mental Health Network
    • Heart Failure
    • Lighting Your Way
    • Mental Health Challenges
    • Parkinson’s Disease
    • Rare Disease
    • Schizophrenia
    • Sickle Cell Disease
    • Stroke
    • TBI
    • More Conditions >>
  • Caregiver Resources
    Toolbox

    Explore CAN Resources

    Search by disease/condition, resource type, or caregiver role to find checklists, guides, and helpful tools for every stage of caregiving.

    10 Tips for Family Caregivers

    From seeking support to organizing medical information, find practical advice to navigate your caregiving journey with confidence.

    Information

    Basics of Caregiving

    Gain valuable tools, documents and checklists to support you on your caregiving journey.

    Financial & Legal Tools

    From understanding how to get paid as a family caregiver to accessing government benefits and assistance programs, find practical guidance and downloadable checklists to support your caregiving journey.

    Support
    Agencies & Organizations
    Community
    Respite Care
    Peer-to-Peer Support
    Emotional Support
    Clinical Trial Support

    Volunteer Services

    Community Care Corps is a national program that fosters innovative local models in which volunteers provide nonmedical assistance to family caregivers, older adults, or adults with disabilities in order to maintain their independence.

    View the caregiver-focused grantees. >>

    • 10 Tips for Family Caregivers
    • Agencies & Organizations
    • Basics of Caregiving
    • Clinical Trial Support
    • Community
    • Emotional Support
    • Financial & Legal Tools
    • Respite Care
    • Toolbox
    • Peer-to-Peer Support
    • Volunteer Services
  • About CAN
    CAN Initiatives

    NFC Month

    National Family Caregivers Month – celebrated each November — is a time to recognize and honor family caregivers across the country.

    CARE2030

    An initiative designed to connect caregivers, organizations, employers, innovators and key stakeholders by coordinating visibility, navigation and support into a system that makes caregiving manageable for every American.

    About CAN
    Who We Are
    Leadership
    Innovation Council
    Celebrity Champions
    Corporate Partners
    Public Policy
    Caregiver-Ready Workplaces
    Caregiving Landscape
    Lend Your Voice

    Caregivers in Context

    Caregiver Action Network is focused on bringing together storytelling, research, and cultural moments to influence how caregiving is portrayed in entertainment and understood in everyday life.

    • CARE2030: Building America’s Caregiver Support Infrastructure
    • Caregivers in Context
    • Caregiving Landscape
    • Celebrity Champions
    • Corporate Partners
    • History
    • Innovation Council
    • Leadership
    • Lend Your Voice
    • Mission
    • NFC Month
    • Caregiver-Ready Workplaces
    • Public Policy
    • Who We Are
  • Stay Connected
    Stay Connected

    Community

    Share your journey, find resources, and connect with others who understand. You’re not alone in navigating the challenges of caregiving.

    Media

    Explore press releases, request reprint permission, and view media resources for comprehensive coverage of our organization’s initiatives and news.

    Events

    Discover upcoming webinars, workshops, and sessions designed to support, educate, and empower family caregivers in every stage of their journey.

    Donate

    CAN is a non-profit organization providing education, peer support, and resources to family caregivers across the country free of charge.

    Contact

    Contact us to request a speaker, share your story, or get in touch with our team.

    • Contact
    • Media
    • Events
    • Community
    • Donate

Caregiver Story

Caregiver Story

    • Understanding Tardive Dyskinesia through Tims story

    Tim’s Story: Navigating Tardive Dyskinesia as a Caregiver

    Tardive dyskinesia (TD) affects thousands of individuals taking antipsychotic medications, yet many caregivers, like Tim from Montana, have never heard of this condition until their loved one receives a diagnosis. Tim's story of caring for his wife Maddie, who lives with both schizophrenia and tardive dyskinesia, illustrates the complex challenges of navigating dual [...]

    LEARN MORE
    • Huntington's Disease reaction of patients to hd diagnosis

    Huntington’s Disease – How Patients React to an HD Diagnosis

    LEARN MORE
    • Huntington's Disease Diagnosis in Loved One

    Huntington’s Disease – Now Your Loved One Has HD – Your Feelings Are Normal

    LEARN MORE
    • complicated grief

    Complicated Grief in Caregiving: Signs, Support & Recovery Stories

    For caregivers, grief often begins long before the final loss of a loved one. This anticipatory grief, combined with the intense emotional and physical demands of caregiving, can lead to a complex form of mourning that may require special attention and support. Understanding when grief becomes complicated is crucial for healing and recovery. What [...]

    LEARN MORE
    • Refueling after caregiving

    Refueling After Caregiving: Self-Care, Grief, and Recovery

    After years of caregiving, it's easy to lose sight of your own needs. When caregiving ends, whether due to the loss of a loved one or the transition into a different stage, it’s critical to focus on refueling after caregiving and rediscovering your own identity. This process is essential for both physical and emotional [...]

    LEARN MORE
    • Empty Road Symbolizing Life After Caregiving

    Life After Caregiving: A Guide to Rediscovering Yourself

    When caregiving ends, many former caregivers find themselves asking a profound question: "Who am I now?" The transition from caregiver to normal life isn't just about changing routines—it's about rediscovering yourself after caregiving and rebuilding an identity that may have been set aside for months or years. A Caregiver's Journey: Carolyn's Story For eight [...]

    LEARN MORE
    • relief after caregiving ends

    Relief After Caregiving Ends: Managing Grief, Guilt, and Healing

    The end of a caregiving journey brings a complex mix of emotions that can feel overwhelming and confusing. While grief is expected, many caregivers are surprised to experience relief after caregiving ends – a natural feeling that often triggers guilt. Understanding these emotions is crucial for healing and moving forward. Understanding the Mix of [...]

    LEARN MORE
    • coping with grief

    Navigating Caregiver Grief: Support & Coping Strategies During Challenging Times

    The Emotional Journey of Caregiving Caregiver grief is a complex emotional experience that often begins long before a loved one's physical passing. For those providing care to family members with conditions like dementia, this grief process can be particularly challenging as you witness gradual changes in your relationship and connection. The emotional challenges of caregiving [...]

    LEARN MORE
    • Caregivers in Context

    Caregivers in Context: The Great Lillian Hall

    The history of television or movies depicting any form of dementia hasn’t always been great. The “crazy old person” or the feeble older adult who is seen only as a burden are harmful tropes that we’ve, thankfully, started to push back on. A New Addition: The Great Lillian Hall A recent addition to the [...]

    LEARN MORE
    • Be A Pin Cushion For Science NIH

    Why I Volunteered to Be a Pin Cushion for Science

    When I was diagnosed with Multiple Sclerosis (MS), back in 1996, it was a shock. It was an unknown. I remember when I told my supervisor at the time, I later overheard him saying something to the effect of “she’s going to die.” No kidding. We all are. A few weeks later, my neurologist [...]

    LEARN MORE
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Caregiver Action Network
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info@caregiveraction.org
Help Desk: (855) 227-3640
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