Caregiving doesn’t pause—and neither does the importance of having the right support. Caregiver Action Network (CAN) is here year-round to help you find trusted information, supportive communities, and practical tools that make each day a little more manageable. Whether you’re caring for a loved one today, tomorrow, or any time of year, connection and support can make all the difference.

The Caregiver’s Role

Multiple sclerosis (MS) is a chronic, unpredictable neurological disease in which the immune system attacks the protective covering (myelin) of nerve fibers, leading to communication disruptions between the brain and the rest of the body. Symptoms can include fatigue, mobility issues, weakness, sensory disturbances, cognitive changes, vision problems, bladder/bowel challenges, and mood or emotional shifts. As MS evolves, caregiving needs often shift—requiring flexibility, education, and proactive planning—to help maintain quality of life and independence for the person with MS.

Multiple Sclerosis

Top 3 Things Caregivers Should Know

Symptom Variability and Flare-Ups Are Common

MS symptoms can fluctuate day to day, and exacerbations (relapses) may occur unexpectedly. Caregivers often have to adapt rapidly: adjusting mobility support, scheduling rest, modifying plans, or helping with acute care during relapses.

Fatigue and Invisible Symptoms Pose Unique Challenges

Many symptoms of MS (pain, fatigue, cognitive issues, heat sensitivity, mood) are “invisible” and sometimes less understood by others. Caregivers may need to advocate, support communication, pace activities, and help the person with MS rest appropriately.

Planning, Assistive Support & Self-Care Are Essential

Over time, mobility aids, home modifications, therapy, and assistive technologies become more critical. Simultaneously, caregivers must guard against burnout by pacing themselves, using respite, seeking peer support, and planning ahead (legal, financial, medical transitions).

Caregiving Resources

Partner Resources

Caregiver Action Network

This resource was developed with support from MS Foundation.