What is a Caregiver?

You might already be a caregiver—here’s what that can look like

A caregiver is anyone who helps another person manage their health, daily needs, or overall well-being—often without pay. You might be a caregiver if you:
  • Help a family member, partner, friend, or neighbor with everyday tasks
  • Coordinate or attend medical appointments
  • Manage medications or health-related needs
  • Provide emotional support, check-ins, or advocacy
  • Assist with household responsibilities or transportation
  • Step in regularly because someone relies on you
If you see yourself in any of these roles, you can identify as a family caregiver—even if you’ve never used that term before. Caregiving looks different for everyone, but every caregiver plays a vital role and deserves recognition and support.

The Caregiver’s Role

Multiple sclerosis (MS) is a chronic, unpredictable neurological disease in which the immune system attacks the protective covering (myelin) of nerve fibers, leading to communication disruptions between the brain and the rest of the body. Symptoms can include fatigue, mobility issues, weakness, sensory disturbances, cognitive changes, vision problems, bladder/bowel challenges, and mood or emotional shifts. As MS evolves, caregiving needs often shift—requiring flexibility, education, and proactive planning—to help maintain quality of life and independence for the person with MS.

Multiple Sclerosis

Top 3 Things Caregivers Should Know

Symptom Variability and Flare-Ups Are Common

MS symptoms can fluctuate day to day, and exacerbations (relapses) may occur unexpectedly. Caregivers often have to adapt rapidly: adjusting mobility support, scheduling rest, modifying plans, or helping with acute care during relapses.

Fatigue and Invisible Symptoms Pose Unique Challenges

Many symptoms of MS (pain, fatigue, cognitive issues, heat sensitivity, mood) are “invisible” and sometimes less understood by others. Caregivers may need to advocate, support communication, pace activities, and help the person with MS rest appropriately.

Planning, Assistive Support & Self-Care Are Essential

Over time, mobility aids, home modifications, therapy, and assistive technologies become more critical. Simultaneously, caregivers must guard against burnout by pacing themselves, using respite, seeking peer support, and planning ahead (legal, financial, medical transitions).

Caregiving Resources

Partner Resources

Caregiver Action Network

This resource was developed with support from MS Foundation.

Explore Your Community Support Options

Personalized Guidance from Caregiving Experts

Personalized Guidance from Caregiving Experts

Available Monday-Friday from 8am – 7pm ET, our experts are ready with the personalized support, guidance, and assistance you need and deserve–for as long as you need it.

(855) 227-3640

24/7 Access to Hundreds of Helpful Resources

24/7 Access to Hundreds of Helpful Resources

The National Caregiver Help Desk App, powered by Carallel, is full of bite-sized resources crafted to help you build skills, validate what you’re feeling, and help you get stuff done.

Use Access Code: CAN

Connection & Community with Other Caregivers

Expert-Led Virtual Fireside Chats

These 30-minute virtual fireside chats address the complex and often difficult topics encountered by caregivers. Sessions are led by Matt Perrin, Carallel’s Director of Caregiver Engagement, and Sheila Schultz, a Carallel Care Advocate.

Community with Other Caregivers

Community With Other Caregivers

Through CAN, Carallel Support Groups give you a place to ask questions, feel understood, and build confidence in your caregiving journey. Access is simple and available when you need it.

Certified Listeners

Connect with Certified Listeners

Looking for someone who really gets it? Get matched with trained listeners who share your lived experience—whether that’s caring for someone with Alzheimer’s, cancer, or another chronic condition.

Facebook Support Group for Caregivers

Online Support Group on Facebook

Join our caregiver community on Facebook to connect with thousands of peers in a welcoming, supportive space.
Ask questions, share experiences, and receive advice any time of day.

We’re meeting caregivers where they are—giving you choices for how you want to connect, whether through expert advice, peer-to-peer empathy, or live support groups.