Caring for a Loved One with Parkinson’s Disease

Caregiving doesn’t pause after November — and neither does the importance of staying connected to the right support. Plug-in to Care helps caregivers find trusted information, supportive communities, and practical tools that make each day a little more manageable. Whether you’re caring for a loved one this holiday season or any time of year, connection can make all the difference.

The Caregiver’s Role

Parkinson’s disease is a progressive neurological disorder that affects movement, balance, coordination, and often brings non-motor symptoms like sleep problems, cognitive changes, and mood disturbances. Caregiving for someone with Parkinson’s involves adapting to changes that unfold gradually over time—supporting mobility, medication management, communication, and emotional health. Because symptoms can vary greatly from day to day, caregivers must balance flexibility with long-term planning and resilience.

Top 3 Things Caregivers Should Know

Medication Timing is Critical

Parkinson’s medications (like levodopa) must be taken on a strict schedule to control symptoms effectively. Caregivers often play a key role in organizing and monitoring medication routines.

Movement & Safety Require Adaptation

Falls and mobility challenges are common. Home modifications, assistive devices, and fall-prevention strategies can help maintain safety and independence.

Emotional & Cognitive Symptoms are Part of the Disease

Parkinson’s isn’t only about movement—it can also involve depression, anxiety, hallucinations, or memory issues. Supporting mental health is just as important as addressing physical changes.

Caregiving Resources

Partner Resources

Parkinson’s Foundation: Caregiving Resources — Guides, tip sheets, and online support for caregivers managing the daily realities of Parkinson’s.
Michael J. Fox Foundation: Parkinson’s Newly Diagnosed Resources — Practical advice, webinars, and community support for caregivers of loved ones navigating a new diagnosis.
American Parkinson Disease Association (APDA): Caregiving Tools — Support, educational programs, and community connections tailored for caregivers.
Ohio Parkinson Foundation Northeast Region (OPFNE) — A regional Parkinson’s organization serving Northeast Ohio, OPFNE offers caregiver support groups, educational programs, wellness classes, a free annual symposium, and local services across their 16-county area.
The HollyRod Foundation — Dedicated to raising awareness and providing resources to families that have a loved one who has received an autism or Parkinson’s Disease diagnosis; advocating for ethical treatment, inclusion, and access to services and treatment of individuals living with autism or Parkinson’s Disease with the goal of empowering them to live their best lives.
Parkinson’s Wellness Fund — Delivering relief to individuals living with Parkinson’s through wellness grants issued directly to families through service providers, free of charge.

Caregiver Action Network

This resource was developed with support from the Ohio Parkinson’s Foundation – Northeast Region & the Movement Disorder Policy Coalition.

Plug-in to Care: Stay Connected

Caregiving can be complex, but you don’t have to face it alone. Plug-in to Care by connecting with trusted resources, supportive communities, and tools that help you care for your loved one — and yourself — throughout the holiday season and beyond.