What is a Caregiver?

You might already be a caregiver—here’s what that can look like

A caregiver is anyone who helps another person manage their health, daily needs, or overall well-being—often without pay. You might be a caregiver if you:
  • Help a family member, partner, friend, or neighbor with everyday tasks
  • Coordinate or attend medical appointments
  • Manage medications or health-related needs
  • Provide emotional support, check-ins, or advocacy
  • Assist with household responsibilities or transportation
  • Step in regularly because someone relies on you
If you see yourself in any of these roles, you can identify as a family caregiver—even if you’ve never used that term before. Caregiving looks different for everyone, but every caregiver plays a vital role and deserves recognition and support.

The Caregiver’s Role

Myasthenia Gravis (MG) is a chronic autoimmune neuromuscular disorder that causes weakness in the body’s voluntary muscles — the muscles we control for movements like talking, swallowing, breathing, and walking. It occurs when the immune system disrupts communication between nerves and muscles by producing antibodies that block or destroy acetylcholine receptors at the neuromuscular junction. This interruption prevents muscles from contracting properly, leading to fluctuating muscle weakness that can worsen with activity and improve with rest.
Caring for a loved one with MG can be uniquely challenging due to the unpredictable nature of the disease. Symptoms can vary greatly from day to day, making it difficult to plan routines or anticipate needs. This uncertainty, along with the emotional and physical toll of caregiving, makes support for MG caregivers essential.
Myasthenia Gravis

Top 3 Things Caregivers Should Know

The Symptoms of MG Fluctuate

Every day can feel and be different for somebody living with Myasthenia Gravis because symptoms fluctuate.

Practice Patience

An oldie but a goodie, patience is a virtue for both the caregiver and the individual living with Myasthenia Gravis.

Moderation is Key

With Myasthenia Gravis, overuse of muscles can make a persons situation worse and cause them to become more fatigued. Everything in moderation.

Caregiving Resources

Partner Resources

  • Myasthenia Gravis Association of the Heartland:

    > Programs & Services — What makes the MGA different? Our programs and services have been built to support patients and families impacted by MG on a personal level. Whether you are in search of a new neuromuscular provider or looking for someone to relate to as you go through the diagnostic process; the MGA is here to guide you through your MG journey with compassion and care.
    > Emergency Wallet — An emergency wallet for your loved one to carry with them so that crucial information is handy for doctor appointments and in the instance of an emergency. info@mgakc.org.
  • Myasthenia Gravis: Cautionary Drugs List — Some medications may make Myasthenia Gravis worse. It is important to weigh the risk of a medication worsening Myasthenia Gravis symptoms and the benefits the medication may provide with your doctor. Check with your neurologist/healthcare providers before surgery and before adding or stopping medications.

This resource was developed with support from Myasthenia Gravis Association of America and Myasthenia Gravis Association of Heartland.

Explore Your Community Support Options

Personalized Guidance from Caregiving Experts

Personalized Guidance from Caregiving Experts

Available Monday-Friday from 8am – 7pm ET, our experts are ready with the personalized support, guidance, and assistance you need and deserve–for as long as you need it.

(855) 227-3640

24/7 Access to Hundreds of Helpful Resources

24/7 Access to Hundreds of Helpful Resources

The National Caregiver Help Desk App, powered by Carallel, is full of bite-sized resources crafted to help you build skills, validate what you’re feeling, and help you get stuff done.

Use Access Code: CAN

Connection & Community with Other Caregivers

Expert-Led Virtual Fireside Chats

These 30-minute virtual fireside chats address the complex and often difficult topics encountered by caregivers. Sessions are led by Matt Perrin, Carallel’s Director of Caregiver Engagement, and Sheila Schultz, a Carallel Care Advocate.

Community with Other Caregivers

Community With Other Caregivers

Through CAN, Carallel Support Groups give you a place to ask questions, feel understood, and build confidence in your caregiving journey. Access is simple and available when you need it.

Certified Listeners

Connect with Certified Listeners

Looking for someone who really gets it? Get matched with trained listeners who share your lived experience—whether that’s caring for someone with Alzheimer’s, cancer, or another chronic condition.

Facebook Support Group for Caregivers

Online Support Group on Facebook

Join our caregiver community on Facebook to connect with thousands of peers in a welcoming, supportive space.
Ask questions, share experiences, and receive advice any time of day.

We’re meeting caregivers where they are—giving you choices for how you want to connect, whether through expert advice, peer-to-peer empathy, or live support groups.