Life As a Caregiver – Words of Wisdom

Insights and advice from those who have walked in similar shoes.

Joanne, Caregiver for Husband, 5 years, California:
The best suggestion that I could give to any caregiver is first of all, know about Alzheimer’s and what it involves because it’s not easy and it doesn’t get better…

Wayne, Caregiver for Mother, 9 years, California:
Consistency is the most important because as people get older and this disease progresses that’s the one thing that they can always anchor themselves with.

Try to keep consistent daily times for activities such as waking up, mealtimes, bathing, dressing, receiving visitors, and bedtime Doing these things at the same time and place can help orientate the person.

Joey, Caregiver for Husband, 12 Years, California:
My advice to any new caregiver is don’t be ashamed of the situation, I believe there’s still a stigma attached to Alzheimer’s. And don’t be afraid to ask questions and don’t be afraid to share your feelings and don’t be afraid to have feelings.

Being an Alzheimer’s caregiver is more than just a one-person job.  Ask for help and show you’re open to receiving it. –Suzanne Mintz

Dalel, Caregiver for Husband, 5 Years, California:
Be proactive, get involved, ask as many questions as you can and be thankful.

Kate, Caregiver for Husband, 1 Year, Texas:
I would say “hopeful” because we, you know, recently diagnosed, hopeful that the medicines will continue to work, and hopeful that there’ll be a cure.

Currently there is no cure for Alzheimer’s disease.

Claudia, Caregiver for Mother, 12 Years, Texas:
I think the word “hopeful” that you used is probably a very good word for not only the people involved in it but we as caregivers and the future generations. That we are hopeful; we are hopeful there will be a cure.

Eunie, Caregiver for Husband, 9 Years, California:
If you don’t have a sense a humor, if you don’t laugh you’re gonna cry an awful lot. So keep your sense of humor.

You are not alone.

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